On Thursday I got an appointment with the ALS Clinic at Columbia. I asked my new doctor, Dr. Harms, about my prognosis. What he said really shocked me and flipped my world view around. He said that I would lose my ability to swallow in 6 months. I do believe him because there has already been a remarkable pace of change since last summer.
I went into this meeting believing that feeding tubes kept elderly people alive when they really should be released. I am 62, and still a working professional. I am writing another book. I can’t leave yet.
So I flipped, I will be getting a feeding tube. I have work to do. I want to put this out there as good news! I’m having too much fun. I can’t leave. Therefore extraordinary steps will be taken to keep me alive!
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Thank you, Robin, for sharing your story.
Many people are praying for you.
Yes, good news that you are here. You are writing a book. You are an important part of the world!
What an inspiration you are! I am praying for you and you are in my thoughts. I’m amazed as I read through your entries. I want you to know that you have been a very positive influence for me and you are appreciated. I don’t know how you do all that you do and so unselfishly. You are quite remarkable.
Robin you’ve been in my heart and in my thoughts since I learned the news. I am so grateful you are doing things that mean a lot to you. I am in awe of your journey.
I am so grateful you are doing things that mean a lot to you. I am in awe of your journey.